The Telomere Project (TTP) was set up by three brothers (Erik, Matt and Michael) to address telomere syndromes ~ in particular idiopathic pulmonary fibrosis (IPF) – an irreversible, fatal telomere syndrome which has claimed the lives of several of their family members.
In 2014 the brothers lost their father to familial IPF. This genetic disorder had already claimed the lives of their uncle and grandfather.
The Telomere Project is focusing on two efforts 1) raising funds to support projects and programs which are building pathways to treatments and a cure. 2) promoting Thrive Tribe – Thrive Tribe is about seeking joy and cherishing the time we have together. It is about community.
The Telomere Project is a 501(c)3 non-profit enabled to receive tax exempt donations.
1: Treatment Focus
We are focusing on the advancement of drug development to treat and cure IPF
2: Scientific Advisory Board
We are assembling the best-in-class team to provide guidance and recommendations as to which research and investment paths have the highest probability of success
Build a community of support and provide information and resources for those affected by TS and IPF. Our aim is for those affected by TS to never feel alone in their fight.
4: Strategic partnerships
Scientific and medical partnerships with public or private sector organizations that can help advance our mission
5: Fiscal responsibility
Fundraise globally with strategic partners and families (and their respective communities), all while operating in a cost-effective manner with an aim to maximize research dollars on the advancement of drug development
We are assembling a best-in-class team to provide guidance and recommendations as to which research and investment paths have the highest probability of success. We are keen to hear from any interested candidates, please contact us.